Dawn, 49 from Colorado: Adhesions, chronic pelvic pain, chronic abdominal pain, bladder pain, lower back pain
I LOVE LOVE LOVE LOVE my PainShield. I have been meaning to write this note for a few months but have gotten so busy with living my life that I have not had the time. Just being able to say those words is a miracle. I have suffered for over ten years with pain related to adhesions likely caused by a burst appendix, operations for ovarian cysts, gall bladder removal, bladder prolapse surgery and hysterectomy. I have had to deal with bladder pain, pelvic pain and lower back pain (probably due to the adhesions wrapped around my kidneys). I have been dealing with this pain for around 14 years and finally got the diagnosis of adhesions 10 years ago. Before I received my miracle machine, I spent the majority of my day lying down.
I have had my PainShield MD since December 2012 and usually place it on my lower abdomen. I move it around based upon where the pain is located. I really like the flexibility of being able to place it where I need it most. The past month I have been able to join my husband while he works. He is a land surveyor and spends quite a bit of time outside. It is a very physical job and while I can in no way do the things he does, I am able to walk around job sites without stopping to take breaks (from pain), or take medication every 2 hours, or even quit after a short period of time. This is what I have had to do in the past so this is such a treat for me. I have missed being able to do things for my family. They are wonderful and have made concessions so that I will not have to do the day to day things in our home. They assure me that they do not feel the way I do, but I fell like I am letting everyone down. Only someone who has been unable to work understands how awesome it is to be able to actually contribute to your family.
Since I have been dealing with this disease for over 10 years now, I have resigned myself to the fact that there simply are things I will never be able to do again. Luckily, because of this machine, I have been able to change this statement. While there are still limitations to my abilities, I have added a few basic items to my list of abilities. Here are a few of the things I have been able to add back into my life: - sleeping: wow, I can sleep more than 2 hours at a time. I have actually made it 6 - hours a few times. - walking: I can now walk for a few hours out on a job site. Not fast, but I can do it. - cooking: So long as it is not a huge meal taking a long time, it has been fun. - stand up straight: you just never know how awesome that is until it is gone. - riding in a car: I can now ride to visit family. I pay for it but it can be done, plus less bathroom stops which thrills my husband. - play with grandkids: I was able to take my 4 year old grandson to the park and hold his hand and catch him from the slide. This is just a short list of the things I have gotten back. I wish I could tell you that I am no longer having to take my medication to get through the day, but I still need it. The good news is that I there are actually days when I need it less. I am on narcotics and as you know, the stigma associated with them is not a pleasant consequence. I used to take them every 2 hours and on some days I can even go 6 to 8 hours. Hurrah! I have learned to take the small victories and not discount them because they are not a cure. Every step forward is a great one.
Before this machine, all I had were steps backward. My husband is a good at seeing how I am feeling and then telling the truth. He doesn't look for only the positive things like my Mom. She wants me to be cured so every time I have a good hour, I am getting better. She tends to be less realistic. The reason I am telling you this is so you can understand the value in this statement. He told me that before the machine, I would have maybe 1 good day for every 6 bad days. Lately I have had 3 good days for every 5 bad ones. Not an insignificant improvement I would say. I tend to use my machine more when I am having a bad day and I really need to remember to use it when I am having good days as well. I say this because the few times I have done that, I have noticed that the good days seem to last longer. It is because of this that I have purchased a second machine.
I feel like I am just going on and on about how happy I am about this machine and I wish I could express how helpful you have been with this entire process. Your contributions and dedication are very appreciated. We are blessed to have someone like you on our side. Thank you! I have one last thing to add. Your advise on how to make the patches last longer has been invaluable. I have not needed new patches since I purchased the machine. I don't know why, and I am not going to complain, but so far I have not met the spider (display sign showing time to change a patch). Hurrah! In addition I have used the machine on other pains I have had to deal with. There is a chance I have added gout to the list of challenges I get to enjoy. I put the machine on my foot and by morning the pain was gone. It has only come back once so I have not followed up with the doctor. Why do it, there is nothing they can do anyway. If this works, it is just one more medication I can avoid. Thanks again for all you have done and I look forward to hearing from you about the steps necessary to rush another miracle machine my way (7/21/13)
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